Promotion of Illness Perception and it’s aspects in a Multiple Sclerosis (MS) Peer Support Groups
DOI:
https://doi.org/10.22100/jkh.v8i1.40Keywords:
Multiple sclerosis, Illness perception, Peer support groupAbstract
Introduction: Illness perception is the beliefs that patients have about their illness and it influences patients’ decision for effective behavior to achieve positive results such as adapting with the disease and improving functionality. Since there are no studies about illness perception of MS in Iran, the present study aims to evaluate the impact of peer group on illness perception level in patients with MS.
Methods: This was a quasi-experimental before-and-after design research that was conducted on 33 patients with MS in three supporting peer groups (10 participants in men group, 11 in women group, and 12 in the mixed group). The participants attended two-hour sessions for eight weeks. Illness perception level in patients was assessed before and after the formation of groups by the "Revised Illness Perception Questionnaire (IPQ-R)” whose Cranbach’s alpha coefficient was 0.80.
Results: The results showed that although the mean score of the patients’ illness perception increased, but it was not significant. Between three groups, attending peer support group increased illness perception in the mixed group (p=0.01).
Conclusion: The findings of the present investigation asserted that participating in peer groups ends in augmentation of illness perception level in MS patients also, as social support create a feeling of belonging and thus may help sufferers of MS adapt better to life events then it would be beneficial to develop interventions for MS patients based on social support and illness perception. The obtained results of this study can be utilized in education of medical groups and clinical management.
References
Smeltzer SC, Bare BG, Hinkle JL, Cheever KH. Brunner and Suddarth’s Textbook of Medical Surgical Nursing. Volume 2. 11th edition. Philadelphia: Lippincott; 2008.
Rosati G. The prevalence of multiple sclerosis in the world: an update. Neurol Sci 2001;22(2):117-39.
Alonso A and Herbasin MA. Temporal trends in the incidence of multiple sclerosis: a systematic review. Neurology 2008;71(2):129-35.
Halper J, Holland DJ. Comprehensive Nursing Care in Multiple Sclerosis. 3rd ed. New York: Springer Publishing Company; 2010.
Vazirinejad R, Lilley J, Ward C. A health profile of adults with multiple sclerosis living in the community. Multiple Sclerosis 2008;14(8):1099-1105.
Shahbeigi, S. 7th International Congress of Multiple Sclerosis Tehran, Iran. Medial News. 2010 November 4.[Persian].
Masoodi R, Mohammadi E, Nabavi M and Ahmadi F. The effect of Orem based self-care program on physical quality of life in multiple sclerosis patients. Journal of Shahrekord University of Medical Sciences 2008; 10(2): 21-30.[Persian].
Dennison L, Moss-Morris R, Chalder T. A review of psychological correlates of adjustment in patients with multiple sclerosis. Clinical Psychology Review. 2009;29(2):141-153.
Matti AI, Keane MC, McCarl H, Klaer P, Chen CS. Patients' knowledge and perception on optic neuritis management before and after an information session. BMC Ophthalmolog. [serial online] 2010 March;10 (7):[ 6 screens]. Available from: http://www.biomedcentral.com/content/pdf/1471-2415-10-7.pdf.
Stuifbergen AK, Becker H, Blozis S, et al. A randomized clinical trial of a wellness intervention for women with multiple sclerosis. Archives of Physical Medicine and Rehabilitation 2003;84(4): 467-476.
Percy CA, Gibbs T, Potter L and Boardman S. Nurse-led peer support group: experiences of women with polycystic ovary syndrome. Journal of Advanced Nursing 2009:65(10):2046-2055.
Noonan CW, Williamson DM, Henry JP, Indian R, Lynch SG, Neuberger JS, et al.The prevalence of multiple sclerosis in 3 US communities. Preventing Chronic Disease 2010:7(1):A12.
Lassiter PG. In: Stanhope M and Lancaster J editors. Community Health Nursing. 6th Edition. 2005; Philadelphia: Mosby; 2005: p.540-556.
Uccelli MM, Mohr LM, Battaglia MA, Zagami P and Mohr DC. Peer support groups in multiple sclerosis: current effectiveness and future directions. Multiple Sclerosis. 2004;10(1):80-84.
Sluiter JK. Frings-Dresen M. Quality of life and illness perception in working and sick-listed chronic RSI patients. Int Arch Occup Environ Health 2008;81(4):495-501.
Moss-Morris R, Weinman J, PetrieJK, Horne R, Cameronld LD and Buick D. The Revised Illness Perception Questionnaire. Psychology and Health 2001;17(1):1-16.
Petrie KJ, Jago LA, Devcich DA. The Role of Illness Perceptions in Patients With Medical Conditions. Current Opinion in Psychiatry 2007;20(2):163-167.
Timmers L, Thong M, Dekker FW, Boeschoten EW, Heijmans M, Rijken M, et al. Illness perceptions in dialysis patients and their association with quality of life. Psychology and Health 2008;23 (6):679-690.
Dee Ford D, J Zapka, Gebregziabher M, Yang C, Sterba K. Factors associated with illness perception among critically ill patients and surrogates. CHEST 2010;138(1):59-67.
Petriček G, Vrcić-Keglević M, Vuletić G, Murgić L. Illness perception and cardiovascular risk factors in patients with type 2 diabetes: cross-sectional questionnaire study. Croat Med J 2009;50 (6):583-593.
Spain L.A, Tubridy N, Kilpatrick TJ, Adams SJ, Holmes CAN. Illness perception and health-related quality of life in multiple sclerosis. Acta Neurologica Scandinavica. 2007; 116 (5): 293-299.
Masoodi R, Khayeri F, Safdari A. Effect of self- care program based on the Orem frame work on self-concept in multiple sclerosis patients. Journal of Gorgan University of Medical Sciences. 2010;12(3):37-44. [Persian].
Paul GM, Smith SM, Whitford DL et al. Peer support in type 2 diabetes: a randomized controlled trial in primary care with parallel economic and qualitative analyses: pilot study and protocol. BMC Family Practice. [serial in the internet] 2007[cited 22 July 2009]. 8 (45):[ 11 screens]. Available from: http://www.biomedcentral.com/1471-2296/8/45.
Mok E and Martinson I. Empowerment of Chinese patients with cancer through self-help group in Hong Kong. Cancer Nursing 2000;23(3):206-213.
Coward DD. Facilitation of self-transcendence in a breast cancer support group: II. Oncology Nursing Forum 2003;30(2):291-300.
Who.int [homepage on the Internet]. Geneva: World Health Organization “Process of translation and adaptation of instruments.” [updated 2007 March 16; cited 2009 June 29]. Available from: http://www.who.int/substance_abuse/research_ tools/translation. Assessed August 2, 2009.
Bell K, Lee J, Foran S, Kwong S, Christopherson J. Is there an "ideal cancer" support group? Key findings from a qualitative study of three groups. J Psychosoc Oncol 2010;28(4):432-49.
Devitt B, Hatton A, Baravelli C, Schofield P, Jefford M, Mileshkin L. What should a support program for people with lung cancer look like? Differing attitudes of patients and support group facilitators. J Thorac Oncol 2010;5(8):1227-32.
Downloads
Published
Issue
Section
License
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
